Category Archives: Learning About Perthes

Balancing Attention Between Children When One Is Disabled

A little while ago, I asked a favour of you readers to ask me your questions so I can give you content that you want to read (keep those questions coming guys, it’s an open ended invitation) and this was … Continue reading

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When the cold strikes

There are days when I can almost forget that Celine has Perthes Disease. Bright sunny days where Celine keeps up with her younger siblings no problem. Days when she feels no pain at all. Days when she is so active … Continue reading

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Perthes Disease Q&A Vlog Answered (Video)

A while ago I posted asking for your questions to Celine & myself aimed at a new Q&A vlog about Living with Perthes Disease and what life was like for Celine coming off the crutches. I did do that Q&A … Continue reading

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Some Disabilities Can’t Be Seen

A week or so ago, an interesting comment appeared on my most popular family life vlog. The one of Celine receiving a new pair of colourful crutches that was donated by a theatre group. The comment read “there is nothing … Continue reading

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What are the Containment Treatments Options?

In a normal hip joint the femur head usually sits about two-thirds inside the pelvic hip socket. The disintegration stage of Perthes Disease affects this positioning as the femur head flattens. As the head flattens it can start to slip … Continue reading

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What is an External Fixator?

An External Fixator (or Ex-Fix as it is also known as in the Perthes Disease world) is part of a treatment type known as Distraction or Arthodiatasis. The Ex-Fix works by attaching a mechanical brace to the child’s hip by … Continue reading

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What is the Crutch and Sling system?

The Crutch and Sling system is the approach we used with Celine during the fragmentation stage of her Perthes Disease journey. It evolved from the “Wait and See” approach suggested by our GP on her Perthes Disease diagnosis. Basically it … Continue reading

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